In the art world, “ultra rare” objects are coveted. But in the world of pediatric medicine, an “ultra rare” diagnosis is devastating. With so few cases, there’s very little money or
research put towards finding a treatment or a cure for the children affected by it.

In Dec 2023, we launched ultrararecollection.com, an initiative designed to turn that terrible disadvantage - the
rarity of CASK gene disorders - into a way to help. All art created was auctioned off online and at a gallery event in Chelsea.

Within 5 days, we sold out. All funds went to research to cure CASK gene disorders.